I watched a TED Talk called “Facing Death Full of Life” by Danielle Valenti. It was about her journey with Huntington’s disease first as a caretaker, then with it as her future. I chose to watch this TED Talk because the title of it got my attention to live life to the fullest, even in horrible circumstances. It solidified my understanding of Huntington’s disease (HD) that I learned in class about the the genetic link and symptoms experienced. Additionally, it equipped me with a deeper understanding of what a person with a recent diagnosis is going through. Danielle’s mother kept her diagnosis of Huntington’s disease a secret to “protect” her until the symptoms were too obvious to hide any longer. Her mother refused food for 67 days which ended in her death at the age of 55. Danielle no longer had the role of being her mother’s caretaker to distract her from the fact that she could have Huntington’s disease, too. She said she was unable to mourn her mother’s death until she receiv...
The journey of an occupational therapy student.